05102017 Searching For Answers
After my cousin spoke to me about EDS for the first time, I made an appointment with the pediatrician. When we went to the appointment and shared our concerns, she told us that Sis was a hypermobile child, and may indeed have EDS. She also said that a diagnosis wouldn’t do much for us, because there isn’t a cure, and there isn’t anything we can do to help. It’s basically just a diagnosis. Still, we pushed for the referral, and waited to hear from the genetics department.
A few weeks later, I received a call from the children’s hospital; they informed us that we were on a waiting list and would be seen by the geneticist. They scheduled the appointment for fourteen months later. I asked, incredulously, if there was anything available before then. They assured me that there was not, but that Sis would be placed on a waiting list, and that if something opened up, they would give us a call.
As an oldest child, I’ve not been afraid of much as a mother – many things have worried me – mostly making the absolute best choices for my children. I’ve never stewed over anything as much as I think about doing the absolute best for them. I didn’t even really consider marrying my husband longer than 30 minutes! I spent 30 days or more trying to determine whether to send a five-year-old to kindergarten, however, I had an army of more experienced moms cheering me on, and an amazing Kindergarten teacher who gave me confidence and assurance.
Once we had Sis settled into school, Son into full time daycare and myself into a routine working at the school, I began to ask more questions about Ehlers Danlos Syndrome and
Again, another unfinished post. Well, that’s the way it goes. You’ll figure it out as you continue. The whole story is inside.
Momma Rich's 